CLL & Covid

My husband has Chronic Lymphocytic Leukaemia- CLL- he was diagnosed by chance back in 2016 although they think from the symptoms he used to go to the GP about he has had it since 2012. One of the symptoms is fatigue and getting exhausted easily. He will fall asleep in the afternoon or be in bed by nine. He has been double vaccinated and had the booster. He still wears a mask when out and about and at work where he works mainly outside. After the second jab his glands became swollen, this is also another symptom of CLL when run down or fighting an infection. He got it checked and was advised that he had a bad reaction to his second shot and that the consultant had heard of others with the same.

On the evening of the 13th October 2021 he had his booster shot. Around the 21st October his glands started swelling followed by a bad cough and cold. As usual he was fatigued, we thought this was a reaction to the vaccination again but to be safe we did a lateral flow test on the 27th which was negative. In-between his bouts of fatigue he was alert, chatting and watching programmes, this led us to further believe it was a reaction to the booster. Over the next two days he became weaker, he had put off going to the doctors as he didn’t want to go to the surgery or end up in hospital as he believes he won’t come out. The doctor finally saw him Friday evening and he was sent straight to A&E. He is now in a COVID ward dehydrated determined not to die. I am at home and tested positive for COVID, I am not as bad as my husband, I have a horrendous cough, sneezing, a rash and a cold, I am also losing the taste of things. I am annoyed with myself as from Wednesday 27th my coffee was tasting funny but everything else tasted fine, which as my daughter pointed out change in taste can be one of the first signs.

The thing is we are both double jabbed, have only recently started going to a supermarket once a week to get some shopping, always wear a mask, use hand sanitiser, keep distance as much as possible. I work from home and my husband works mainly out side and still maintains social distance and wears a mask. So we are perplexed as to how and where he may have got it. The hospital think he may have picked it up when he got his booster shot. I am currently unsure if I will have the booster shot as if I recover from this I do not want to get it again.

I know this post is a little different but if it encourages one person to call their doctors surgery or 111 sooner rather than later to nip it in the bud as they say. then it helps. We didn’t because some of the symptoms were normal non covid ones for my husband. Since I was a child I get an annual cough so didn’t think anything of it especially as we were so careful. I am still glad I had the vaccine as I would be a lot worse without it. Right now I am just praying that he makes it out alive. Stay safe, wear a mask, be kind to one another

UPDATE

He is still in hospital on a number of drips and on an experimental COVID drip he is lucid and is better although last night he took a severe dip. I am feeling a little better but when I am I forget about some of the symptoms I have with comes back and hits me with a full force.

MY symptoms have been : Cold and flu type symptoms, cough, change of taste, backed nose, sneezing, runny nose, severe sinus pain- like an earache pain in your nose, hot flushes, and a headache which I originally thought was a migraine and the breathlessness.

02.11.2021 . Husband is home, still tired and breathless, has a cough he is resting but so much better, he just needs to drink more water. I am feeling a lot better today, cough has finally lessened and headaches are less.

08.11.21 Husband is much better, he is drinking more which is good. We both still get breathless intermittently for no reason, have a niggly cough and dry throats. He still gets tired which is a mixture of his CLL and the Covid-19. We have been told these could last weeks. I also have the change of taste. I am longing for a normal tasting coffee. We are both very thankful we are over the worst

17.11.21 We are definitely better, I still have the odd bout of breathlessness, a dry throat and waiting for the taste buds to come back, Husband has the same but still has the tiredness and a cough. Thank you for all your kind messages. Still can’t work out how we got it which is very annoying but we survived, for which we are thankful

3 thoughts on “CLL & Covid

  1. I am so sorry you’re going through this. This disease is horrible. I hope you both recover soon and your husband is home with you again soon. Take lots of care. I’ll be thinking of you all, bw pink

  2. I was just on Ravelry and saw something you had sent me yonks ago and thought I would look you up and what good things you had been stitching.
    I am really sorry to see your last blog post – well its only one I looked at as feel compelled to contact you – but I am really really sorry and will be thinking of you and hubby and hope that things improve for your both.
    I guess your grandkids must be fair growing up by now too.
    Thinking of you and wishing you well.
    Ros

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